I’m talking here about Spoon Theory and how it’s become a really useful tool not just for myself but for my whole family.
To quote from Wikipedia –
‘The term spoons was coined by Christine Miserandino in 2003 in her essay “The Spoon Theory.” While out to eat with a friend, Miserandino’s friend began watching her as she took her medication and suddenly asked what it was like to have lupus. Miserandino grabbed spoons from around the diner where they sat and gave her friend the handful of spoons she had gathered. The spoons helped Miserandino to show the way that people with chronic illness often start their days off with limited degrees of energy. The number of spoons her friend had was how much energy she had to spend throughout the day.
As Miserandino’s friend stated the different tasks she completes throughout the day, Miserandino took away a spoon for each activity. She took spoon after spoon until her friend only had one spoon left. Her friend then stated that she was hungry. To which Miserandino replied that eating would use another spoon. If she were to cook, a spoon would be needed for cooking. She would have to select her next move wisely to conserve her energy for the rest of the night.’
So, why has this become so important to us?
Looking through all my posts, I realised that I’d never written anything about something that looms large in my life every single day and also in that of my fictional alter-ego, Mac Maguire. It can, by itself, decide whether a day is going to be good or bad.
So, what brought this up in the first place? I was having an email conversation with one of my readers, who also has pain issues, when I was reminded of a review that someone left for one of my books a few years back. I’m paraphrasing here but it went something like – ‘It’s a good story and we know that the lead character suffers from pain but I don’t know why the author needs to keep mentioning it.’
To explain, Mac Maguire is the main character in my crime series of books. He’s a former police officer and murder specialist who was forced to retire from the force due to damage to his lower spine. This damage led to him having ongoing pain issues, in fact, pain issues very similar to mine! So, why did I saddle poor Mac Maguire with this in the first place? I was working at the BBC when I finally had to admit that I had a disability and it was only then that I began to notice the absolute lack of disabled people on TV and radio. This was also true for books and movies. So, when I began writing (ironically to take my mind off my pain) I wanted to ensure that I did my bit to make disabled characters more visible and that is why Mac Maguire inherited my pain issues.
Firstly, like my main character Mac Maguire, I identify as being disabled. However, I’m not in a wheelchair like the sign says. Why on earth a depiction of a very specific disability is used for all disabilities is beyond me. We need a new sign but we also need some new words. Continue reading